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Internacionales

E-ENERCA: New e-Health Services for the European Reference Network on Rare Anaemias
Coordinador del Proyecto: Dr. Vives Corrons (Hospital Clínico de Barcelona)
Work Package 7: Carlos María Romeo Casabona

Fecha de comienzo: Septiembre 2013
Fecha prevista de finalización: Agosto 2016

Resumen: The general objective of e-ENERCA is to provide professionals and patients with e-Health tools to assure the same level of access to rare anaemias (RA) services across Europe. e-Health services will be developed through the implementation of three e-platforms endorsed on the ENERCA website. The specific objectives are: 1) to enhance the creation and use of European inventories to gather updated and reliable data on centres of expertise (CEs) and epidemiological figures. 2) To facilitate the continuing medical education and best practices. 3) To create a telemedicine platform for the provision of health care and medical advice avoiding the need of physical travelling. 4) To promote the recognition of CEs on RA by national health authorities and ENERCA as the European Reference Network for RA. 5) To develop e-Health tools in the field of RA and promote their use among the scientific community and patients' associations and 6) to assure the project sustainability in the future.:

Otras Empresas, Universidades y/o Instituciones que colaboran/participan en el Proyecto: August Pi i Sunyer Biomedical Research Institute – IDIBAPS (Spain); Centre Hospitalier Régional Universitaire de Montpellier – CHUM (France); Cliniques Universitaires de Bruxelles Hópital ERASME (Belgium); Universitair Medisch Centrum Utrecht – UMCU (The Netherlands); Fondazione IRCCS Ca granda Ospedale Maggiore Policlinico – lRCCS (Italy); Thalassaemia International Federation - TIF (Cyprus).:

Página web de referencia: www.enerca.org


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