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Law and the Human Genome Review
Number 44
January - June 2016
ACCESO ON LINE: Acceda al contenido de la Revista de Derecho y Genoma Humano / Law and the Human Genome Review en nuestro nuevo Portal de Noticias y Librería Multimedia: Bioderecho.eu
ON LINE ACCESS: Free access to the Law and the Human Genome Review content in our new Website of News and Multimedia Library: Bioderecho.eu
Opinion
ENERCA. A pioneer EC Project for patients’ rights in cross-border healthcare implementation
Joan Lluis Vives Corrons (Barcelona, Spain)

Cross-border genetic diagnosis and healthcare of rare diseases: a European legal framework
Carlos María Romeo Casabona (Bilbao, Spain)

Articles
From ENERCA to the establishment of a European Reference Network of centres of expertise in Rare Hematological diseases: potential ethical issues impacting on its implementation
María del Mar Mañú Pereira / Victoria Gutiérrez Valle (Barcelona, Spain)

Impact of the Directive 2011/24/EU on the application of patients’ rights in cross-border healthcare. A comparative analysis
Pilar Nicolás Jiménez / Emilio José Armaza Armaza (Bilbao, Spain) Andrea Perin (Bilbao, Spain / Trento, Italy)

La inferencia causal, el problema de la demarcación y el uso del análisis filogenético en el proceso penal: ¿Hacia una nueva figura de juez? (A propósito de la Sentencia de la Corte de Casación italiana en el caso Grandi Rischi y sobre la responsabilidad penal por contagio de agentes infecciosos)
Andrea Perin (Bilbao, Spain / Trento, Italy)

Case Law Notes
ABC v St George’s Healthcare NHS Trust and Others: Should there be a right to be informed about a family member’s genetic disorder?
Edward S. Dove (Edinburgh, United Kingdom)

Reports
Impact of the Directive 2011/24/EU in the Italian National Legal System
Lucia Busatta (Trento / Padua, Italy)

Impact of the Directive 2011/24/EU in the Cyprus National Legal System
Aristoteles Constantinides / Savvas Meliniotis (Nicosia, Cyprus)

Impact of the Directive 2011/24/EU in the Netherlands National Legal System
André den Exter (Rotterdam, the Netherlands)

Impact of the Directive 2011/24/EU in the Spanish National Legal System
Fernando Fonseca Ferrandis (Madrid, Spain)

Impact of the Directive 2011/24/EU in the Polish National Legal System
Miroslaw Nesterowicz/Natalia Karczewska-Kaminska (Torún, Poland)

Impact of the Directive 2011/24/EU in the Belgian National Legal System
Herman Nys (Leuven, Belgium)

Impact of the Directive 2011/24/EU in the French National Legal System
Emmanuelle Rial-Sebbag (Toulouse, France)

Impact of the Directive 2011/24/EU in the German National Legal System
Jürgen Robienski (Hannover, Germany)

Impact of the Directive 2011/24/EU in the United Kingdom National Legal System
Annie Sorbie / Murray Earle (Edinburgh, United Kingdom)

Documents
Recommendation on cross border genetic testing of rare diseases in the European Union

ENERCA recommendations for centres of expertise in rare anaemias: a white book. Executive summary

Bibliography
Books and journals reviews
Ética en la investigación de las enfermedades raras
VV.AA.
(Lydia Feito)

References to books, articles in periodicals and to other documents

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